A documentary about a courageous and passionate young man who was born with a rare skin disease EB (Epidermolysis Bullosa). The ﬁlm follows him in his daily life, his struggles, the ups and downs, his controversial choice of euthanasia and his endless search for the one thing that was always out of reach for him – love. It will soon be broadcasted on Dutch Television BNN VARA and will be released in International Film Festivals.
I met Bor Verkroost many years ago and was fascinated by his persistence and incredible drive. Bor was a real advocate for the disease EB (Epidermolysis Bullosa) and wanted the world to understand it better.
I wanted the audience to get a glimpse into the life of someone who goes to battle each day, ﬁghting to overcome pain, to get through simple daily tasks, searching for love and to be seen as he really was within and not be deﬁned by his blistering skin.
He wanted me to ﬁlm him up close and personal so that he could help others with the same or similar challenges.